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Lara Bingle's celebrity hairdresser reveals he has a deadly disease which wiped out his whole family

Lara Bingle's celebrity hairdresser reveals that he is living in fear after being told he WILL die from disease which killed three fam

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Lara Bingle’s celebrity hairdresser reveals that he is living in fear after being told he WILL die from disease which killed three family members in one year

  • Sydney hairdresser, Jaye Edwards, 30, has worked with some big celebrities  
  • In 2017, Mr Edwards lost his father, sister and cousin to motor neurone disease  
  • He got tested for the disease and found out he has the same deadly gene 

A celebrity hairdresser has been told he will die from the same deadly disease that killed three of his family members in one year.   

Jaye Edwards, 30, owns his own  haircare brand, Jaye Haircare, and is the founder of eight Edwards and Co hairdressing salons across Australia. 

He has won numerous awards in his field and has worked with some of the countries top celebrities including Lara Bingle. 

In 2017, Mr Edwards lost his father, sister and cousin to motor neurone disease while his grandmother, her sister and several of his cousins have also died from the disease. 

The deaths in his family three years ago prompted him to get tested which revealed he also had the same gene.  

Sydney hairdresser Jaye Edwards (pictured), 30, owns his haircare brand, Jaye Haircare, and is the founder of eight Edwards and Co hairdressing salons across Australia

Sydney hairdresser Jaye Edwards (pictured), 30, owns his haircare brand, Jaye Haircare, and is the founder of eight Edwards and Co hairdressing salons across Australia

He has won numerous awards in his field and has worked with some of the country's top celebrities including Lara Bingle (pictured)

He has won numerous awards in his field and has worked with some of the country’s top celebrities including Lara Bingle (pictured)

MND is a neurodegenerative disease that causes rapidly progressive muscle weakness, specifically the nerve cells that control the muscles that enable someone to move, speak, breath and swallow. 

There is no known cure for MND and no effective treatment. 

Mr Edwards said the gene will become active in his body at some point but he doesn’t want anyone to feel sorry for him. 

‘Statistics say I will get it eventually, usually between 45 and 65 but my sister was only 25 and she and my father died six months after they were diagnosed so it moved very quick,’ Mr Edwards told The Daily Telegraph.

Mr Edwards lost his father, sister and cousin to motor neurone disease in one year while his grandmother, her sister and several of his cousins have also died from the disease

Mr Edwards lost his father, sister and cousin to motor neurone disease in one year while his grandmother, her sister and several of his cousins have also died from the disease

The deaths in his family three years ago prompted him to get tested which revealed he also had the same gene

The deaths in his family three years ago prompted him to get tested which revealed he also had the same gene

Upon his positive test results, Mr Edwards said any time he felt pain in his body, he would have a panic attack and thought he was about to die. 

He has since taught himself to not think about it too much.  

‘Even though it is constantly at the back of my mind, I just don’t give it attention. If you give it attention, you are wasting all of this energy on something that might happen,’ he said. 

Instead of focusing on the disease, Mr Edwards is thinking about his legacy and how he can ‘elevate’ the hairdressing industry while giving opportunities to people who want to enter the field. 

‘I want to make sure that when this is all finished, that I have left a legacy of increasing salaries for hairdressers, making sure that people understand it is a career and a career choice, not just a career for dropouts.’

WHAT IS MOTOR NEURONE DISEASE? 

  • Motor neurone disease causes rapidly progressive muscle weakness, specifically those that enable someone to move, speak, breath and swallow.
  • This starts slowly and progressively gets worse and eventually leads to paralysis. 
  • The exact cause for the disease is unknown but is believed to be a combination of environmental, lifestyle and genetic factors. 
  • Around one out of ten cases are inherited due to a genetic mutation. 
  • If a person inherits the MND gene, there is a 50/50 chance their children will too.  
  • There is no known cure for MND.  

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